Updates
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Novo Nordisk Opens Observational Study of Hemophilia Affects the Brain in Young People
Novo Nordisk is inviting children and young adults with hemophilia A and B to take part in its observational study of how this disease affects ... Read more -
The Eyes of ‘MacDonald the Older’
I look into my son’s eyes and see beauty. I see the vibrant green, which fades into a blue that rivals the sky. Down ... Read more -
A Letter to Those Who Mean Well
Dear Friend, We live in a world where people want to help each other. I know you mean well, but there are a few ... Read more -
Bone Defects Detected at Birth, After Injury, in Mouse Models of Hemophilia A and B, Study Shows
Bone defects were seen since birth — and following injury — in mouse models of hemophilia A and B, but not in Von ... Read more -
Today, I Dance: My Journey to Physical Activity
I grew up believing that it was impossible for a hemophilia carrier who was also a woman to manifest the condition. I had stitches ... Read more
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Your Joint Health Is Important Sponsored Post
Submitted by Takeda Every joint bleed matters 70% to 80% of all bleeds in ... -
Redefining Gender Roles as a Couple Living with Chronic Illness
I have never been one to subscribe to traditional gender stereotypes. Thankfully, we now ... -
Novo Nordisk Partners with Bluebird Bio to Develop New Gene Therapies for Hemophilia, Other Disorders
Novo Nordisk has entered into a collaboration agreement with Bluebird Bio to develop new ... -
FDA Approves Wilate for Adults and Adolescents With Hemophilia A
The U.S. Food and Drug Administration (FDA) has approved Wilate as a prophylactic (preventive) ... -
Wishing My Wife a ‘Happy Birthday’
Oct. 7, 2019, came and went like any other day. Our family went about ... -
Muscular Atrophy Is a Sign That Something Needs to Change
I’m starting to recover from my recent iliopsoas bleed. I’m irritated that my right ...
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Europe’s CHMP Recommends Approval of Hemlibra to Treat Hemophilia A
News
Europe’s Committee for Medicinal Products for Human Use (CHMP) has issued a positive opinion supporting the approval of Hemlibra (emicizumab) for routine prophylaxis of bleeding episodes in hemophilia A patients with factor VIII inhibitors. Hemlibra is a humanized monoclonal antibody that ... Read more