Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Receiving News That’s Hard to Hear

News Hemophilia Limits Quality of Sex Life, Two Studies Reveal

Columns, The Forgotten Factor - a Column by Shellye Horowitz My Father’s Legacy and Prophylactic Treatment

News Nebraska’s Neena Nizar Seeks Cure for Jansen’s, One of World’s Rarest Diseases

Columns, HemoWife - a Column by Alliah Czarielle As a Work-from-home Mom, I Have 3 Full-time Roles

News Marstacimab Improves Clotting in Hemophilic Blood Samples Tested in Lab, Study Reports

News Hemlibra Superior to Factor VIII Therapies in Hemophilia A Patients Without Inhibitors, Trial Data Show

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald A Coloring Book Prompts Reflection on My Choice of a Road to Treatment

News Variations in Certain Immune Genes May Help Predict Risk for Developing FVIII Inhibitors in Hemophilia A

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald A Letter to My Younger Self: Looking Back at My Son’s Diagnosis

Columns, The Forgotten Factor - a Column by Shellye Horowitz Could Relating Common Procedures to Pain Scales Help Patients?

News Hemophilia Patients at Greater Risk for Hypertension, Swedish Study Finds

News Mitsubishi Tanabe Launching Project to Develop Gene Therapies for Hemophilia B

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald The Faces of Worry: Raising Children with Hemophilia

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo When a Bleed Ruins the Day, There Are Still Lessons to Be Learned

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald When Plans Go Awry: I’m Trying My Best to Be Grateful

News NHF, HFA Seek Additional Explanations From Bayer on Mislabeled Kogenate Recall

Columns, The Forgotten Factor - a Column by Shellye Horowitz An Open Letter to Hemophilia Parents

Columns, HemoWife - a Column by Alliah Czarielle My Husband and I Are Blessed in Our First Year of Marriage

News Parent’s Sense of Burden Higher When Child Overweight and Has Inhibitors, Study Finds

News HFA’s FIRST Program, Promoting Women in Patient-centered Research, Wins PCORI Grant

News Oklahoma Ranks Lowest on Programs Key to Rare Diseases on NORD’s 2019 State Report Card

News Rare Disease Groups Seek Public Support to Renew Newborn Screening Act in Senate

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Aiding Our Sons in Building Self-Esteem

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Looking to My Sons’ Futures with Hope

News Hemlibra May Surpass Bypassing Agents in AHA, Study Says

Columns, The Forgotten Factor - a Column by Shellye Horowitz The Female Factor: Supporting Women with Hemophilia

Columns, HemoWife - a Column by Alliah Czarielle Life Goes On Despite My Husband’s Hemophilia and Epilepsy

News BioMarin Preparing to Submit Marketing Authorization Applications for Valoctocogene Roxaparvovec

Columns, Stories from the Road - a Column by Ann Kendall Could Telehealth Create New Opportunities for Hemophilia Care?

News Gene Editing Restores Factor VIII Levels, Eases Bleeding in Mice with Hemophilia A

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald The Perfect Gift for Our Hematology Hero

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald 3 Little Words that Remind Me of the Presence of My PTSD

News Bayer Recalls Mislabeled Kogenate Vials Distributed in the U.S.

Columns, The Forgotten Factor - a Column by Shellye Horowitz Grieving My Father’s Absence in My Hemophilia Journey

Columns, HemoWife - a Column by Alliah Czarielle My Husband Is ‘Happy to Serve’ Despite Injuries

News Longer-lasting Jivi Improves Health and Life Quality, Men with Severe Hemophilia A Say

News European Initiative Targets Diagnosis, Treatment of Rare Diseases

News Two-stage Gene Therapy for Hemophilia A Shows Promising Results in Mice, Researchers Say

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald When Will You Teach Me to Ride a Bike?

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Change Is Hard, but My Son Realizes He Needs to Take Control of His Health

News New Data Support Long-term Effectiveness of Preventive EHL Treatment in Hemophilia A and B

Columns, The Forgotten Factor - a Column by Shellye Horowitz Diagnostic Terms for Women with Hemophilia

Columns, HemoWife - a Column by Alliah Czarielle The Story of a Pearl: Embracing Irritants in a Process of Becoming

News Esperoct Approved in Canada for Treatment of Hemophilia A

Columns, Stories from the Road - a Column by Ann Kendall The Summer of Love Is Alive and Well

News Preclinical Work by Sigilon Supports Cell Therapies as Durable Way of Treating Bleeding Disorders

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald How Hemophilia Care Evolution Has Changed My Family Dynamics

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald From Severe to Mild: My Son Embarks on a New Adventure

News Interim Results of Alta Study Support SB-525’s Potential as Severe Hemophilia A Treatment

Columns, The Forgotten Factor - a Column by Shellye Horowitz We Must Believe Girls and Women with Hemophilia Who Say They Are in Pain

News Vaccination of Hemophilia Patients Varies in Germany and Should Be Reassessed to Minimize Fear, Survey Suggests

News World’s First Alport Stamp Is Macedonian Mom’s Latest Win for Rare Disease Patients

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald My Son’s Trip to a Trampoline Park Is a Triumph Over Hemophilia

News Limited Access to Hemophilia Treatment and Expert Care in Developing Countries Reasons Joint Damage Seen, Study Reports

Columns, The Forgotten Factor - a Column by Shellye Horowitz Women with Mild Hemophilia Deserve Prophylactic Treatment 

News Higher FVIII Blood Levels Seen and Better Maintained with Jivi Than Eloctate, Phase 1 Study in Severe Hemophilia A Finds

News Ixinity for Hemophilia B Now Available in Larger 3,000 IU Vial Size, Aptevo Announces

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Finding Our Way Back

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo Reflecting on My First Father’s Day As a Dad

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Lessons I Learned from My Son’s Diagnosis

News NORD Honors Industry, Patient Advocates at Rare Impact Awards Gala

News Gene Therapy for Hemophilia A, SB-525, Showing Continued Benefits in Trial Data Update

Columns, The Forgotten Factor - a Column by Shellye Horowitz Correcting the Lag in Hemophilia Treatment for Women

News Questionnaires Offer Insight on Hemophilia Patients’ Quality of Life

Columns, Stories from the Road - a Column by Ann Kendall Teens Using the Gift of Gab for Action

News Eurordis Unveils Integrated-care Initiative for Rare Disease Patients

News Summit Fuels Discussion on New and Upcoming Hemophilia Treatments

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald The Demands of a Job vs. the Need for Healthcare

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Children Are Different, and So Are Their Experiences with Hemophilia

News Hemlibra OK’d by Health Canada for Hemophilia A Patients Without Factor VIII Inhibitors

Columns, The Forgotten Factor - a Column by Shellye Horowitz Support Changes Everything

Columns, HemoWife - a Column by Alliah Czarielle Practicing Self-care as a Mom and a Spouse to a Person with Hemophilia

News ‘Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy

News High Adherence to Prophylaxis Improves Physical Activity of Patients With Hemophilia A, Study Says

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald The World Is Changing for Hemophilia Care

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Summer Camp Success: Time with Fellow Warriors Fosters Independence

News Lessons From ‘Tainted Blood Era’ Are Essential to Avoid Future Outbreak

Columns, The Forgotten Factor - a Column by Shellye Horowitz Struggling with Self-infusion

News Most in UK Hemophilia Community Favor Newborn Screening, Study Suggests

Columns, Stories from the Road - a Column by Ann Kendall When You Don’t Have to Be the First

News Physical Activity Levels Low Among Hemophilia Patients in Japan , Study Finds

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald A Vocabulary I Never Knew

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald With a New Treatment, It’s Time to Reorganize Our Routines

News Ratio Between FVIII and Von Willebrand Factor Predicts Relapse in Patients with Acquired Hemophilia A, Study Reveals

Columns, The Forgotten Factor - a Column by Shellye Horowitz Creating Conversation with a Controversial Shirt

Columns, HemoWife - a Column by Alliah Czarielle How a Thumb Sprain Helped Me Understand Synovitis Pain

News Esperoct Stabilizes/Improves Health-related Quality of Life of Patients With Severe Hemophilia A, Study Suggests

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News BioMarin’s Gene Therapy for Severe Hemophilia Yields Sustained Benefit, Data Show

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald I Give My Sons the Best I Have to Offer

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Recognizing the Signs of Depression During Mental Health Month

News Bayer Commits to 5-Year Pact with WFH to Help Hemophilia Patients in Underserved Countries

Columns, The Forgotten Factor - a Column by Shellye Horowitz Educating, Equipping, and Empowering Women with Hemophilia

News Agency Unveils RaDaR to Help Patient Groups Develop Rare Disease Registries

Columns, Stories from the Road - a Column by Ann Kendall Posing a Challenge: The True Cost of Mental Healthcare

News Web-Based Calculator Helps Physicians to Finetune Dosage of Hemlibra for Hemophilia A Patients

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald What Job, the Man and the Legend, Has Taught Us About Suffering

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald This Graduation Season, Take Stock of Your Achievements

News Decision-making for Hemophilia Treatment Differs Between US and UK Doctors, Study Finds