Shared Struggles Allow My Husband and Me to Lean on Each Other
I recently scheduled a consultation with a psychiatrist after years of trying to manage my mental health without professional help. Since I was a teenager, ... Read more
Updates
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Long-term Jivi Continues to Safely Prevent Bleeds in Severe Hemophilia A
Long-term treatment with Jivi safely and effectively reduced the number of bleeding episodes in adolescents and adults with severe hemophilia A, according to up to ... Read more -
Supporters Prepare for World Hemophilia Day
From donning red gear to flooding social media, supporters are gearing up for World Hemophilia Day 2021 on April 17. The event is focused on raising ... Read more -
Spring Has Often Been a Time of New Beginnings in Our Family
This time of year reminds me of hope and the promise of new beginnings. In the spring of 2014, when my son “MacDonald the Younger” ... Read more -
A Lot Has Changed Since My Son Last Attended School in Person
Though the school year is nearly over for my youngest son, Caeleb, who is 15, he just returned to in-person learning for the first time ... Read more
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Continuous Advate IV Effectively Prevented Bleeds in Surgery
Continuous into-the-vein (intravenous) infusions of Advate immediately before and after major orthopedic surgery is as safe ... -
What It’s Like Having Hemophilia and Living in a Rural Town
I live in the middle of nowhere. It is one of the most beautiful places ... -
I Feel Blessed After Celebrating My Birthday With Family
I recently celebrated my 27th birthday in the company of family. Despite being unable to ... -
Hemophilia Carriers at High Risk for Heavy Bleeding After Childbirth
Women who are hemophilia carriers are at a higher risk of experiencing heavy bleeding after ... -
Takeda Donating Hemophilia Treatments for 5 Years to WFH Aid Program
The World Federation of Hemophilia (WFH) announced that Takeda has joined its WFH Humanitarian Aid ... -
Easter Is a Reminder That We Must Face Darkness Before Light
I cannot believe that Easter is a few days away. I keep asking myself, “Didn’t ...
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Europe’s CHMP Recommends Approval of Hemlibra to Treat Hemophilia A
News
Europe’s Committee for Medicinal Products for Human Use (CHMP) has issued a positive opinion supporting the approval of Hemlibra (emicizumab) for routine prophylaxis of bleeding episodes in hemophilia A patients with factor VIII inhibitors. Hemlibra is a humanized monoclonal antibody that binds to ... Read more