Columns, HemoWife - a Column by Alliah Czarielle At Times, Letting Go of Perfection Is the Perfect Decision

News Hemlibra Now Available to Patients in Developing Countries via Aid Program

News Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide

News Preliminary Data Further Show MarzAA’s Potential to Prevent Bleedings

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald We Will Continue to Rebuild Our Lives

News Single Dose of Gene Therapy AMT-061 Proves Effective in Hemophilia B

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo My First Steps into Parenthood

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald What Are the Things That Most Defines Us?

Columns, HemoWife - a Column by Alliah Czarielle To My Husband, the Father of My Daughter

News Higher Doses of Adynovate is Effective as Preventive Treatment for Hemophilia A, Trial Suggests

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald This Is Way Beyond My Understanding

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald My Son Progressed from Severe Hemophilia to Mild, and I’ll Take It

News First Patient Treated in Phase 3 Trial of AMT-061 in Hemophilia B

News Research into Physiotherapy and Rehab for Hemophilia Patients Needed, Review Says

News FDA Revising ‘Draft Guidance’ on Developing Treatments for Rare Diseases

News Study Finds No Differences in Oral Health Quality of Life in Children With Hemophilia

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald There Is Lifesaving Wisdom and Care in the Hemophilia Community

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald A Port Removal and New Beginnings

News Case Reports Call for Need to Customize Management of AHA for Elderly

Columns, HemoWife - a Column by Alliah Czarielle I’m a Mommy Now: Reflections on New Parenthood

News Cell-based Gene Therapy May Offer Long-term Treatment for Hemophilia A, Mouse Study Suggests

News Low Doses of Feiba Cut Risk of Relapse After Acute Bleeding Events in Acquired Hemophilia A, Study Says

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald It’s Not Our Fault!

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo Hi, Baby! My Thoughts on Becoming a Father

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald My Youngest Son Becomes a Teenager

News ISTH-BAT Is Useful to Identify, Assess Hemophilia Patients, Study Suggests

News Activities and Levels of Bleeding Risk They May Carry Ranked by Physical Therapists

News Sigilon, MIT Collaborating to Develop Programmable Cell Therapies for Hemophilia, Other Diseases

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Resolutions to Keep All Year Round

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald When Loss Leads to Strength

Columns, HemoWife - a Column by Alliah Czarielle Dear Person with Disability: Money Matters, but Not Always

News Researchers Recommend Changes to Protocol in Novoseven/Feiba Combo Therapy

News Hepatitis C Virus Is Major Predictor of Liver Cancer in Hemophilia, U.S. Inpatient Data Reveals

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald What Is in a Name?

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Holding onto Hope During the Worst Hemophilia Challenges

News BIVV001 Increases Half-life of Factor VIII in People with Severe Hemophilia A, Phase 1/2a Trial Shows

Columns, HemoWife - a Column by Alliah Czarielle Keeping It Real and Staying Inspired

News Novoeight Safe, Effective in Hemophilia A Patients Over Long Term, Phase 3b Trial Shows

News First Hemophilia B Patient Treated with SB-FIX Gene Therapy in Phase 1/2 Trial

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Our Greatest Masterpieces

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald My Wishes for the New Year

News Catalyst Announces Updates on Two Lead Compounds for Hemophilia

News Rising Healthcare Costs Strain EU Budgets Even as New Therapies Flourish

News Hemophilia Patients Show Worse Oral Hygiene than Healthy Controls, Study Reports

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald When I Have Nothing Left to Give

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo Finding Meaning in Chronic Illness

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Marriage and Chronic Illness: One of the Lucky Ones

News Preventive Use of Idelvion Lets Kids with Hemophilia B Need Fewer Infusions, Trial Shows

Columns, HemoWife - a Column by Alliah Czarielle Minimalism, Filipinos, and Disability

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Memory is Necessary to Move Forward

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald One-word Resolutions for the New Year

News Eloctate and Alprolix Show Long-Term Effectiveness for Hemophilia in Extension Studies

Columns, HemoWife - a Column by Alliah Czarielle An Open Letter to My Husband’s Hemophilia

News New Analysis Confirms Hemlibra’s Sustained Efficacy in Controlling Bleeding in Some Children With Hemophilia A

News Adynovate Approved in Canada for Hemophilia A Patients Younger Than 12

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Merry Christmas, Now Let’s Infuse

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo Merry Christmas from Our HAPLOS Community

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Reaching Out and Inspiring Joy

News For 25th Year, College Scholarship Run by NuFactor Will Honor Hemophilic’s Memory by Helping Others

Columns, HemoWife - a Column by Alliah Czarielle The Truth About Running a Business as a Person with Disabilities

News Bayer Announces the Approval of Jivi for Hemophilia A in Europe

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald I’ve Learned to Accept My Way of Handling a Crisis

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald It’s Time for Inventory, and Perhaps Giving

News Gene Therapies Advancing in Trials Offer Hope to Hemophiliacs, But Concerns Abound

News Potential Gene Therapy for Hemophilia A, AMT-180, May Treat Patients Regardless of Inhibitor Status, uniQure Says

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald This Thanksgiving, I’m Grateful for Family and Peace

News ‘Hemophilia: The Musical’ Lets Teens Confront Their Illness, and Educate Others, via Song

Columns, HemoWife - a Column by Alliah Czarielle My Husband and I Are Each Other’s Keepers

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Ways to Claim a Season of Joy During Difficult Circumstances

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo Exercising with Hemophilia Has More Pros Than Cons

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald PTSD Will Not Define Us

Columns, HemoWife - a Column by Alliah Czarielle Raising a Successful Family Amid Hemophilia

News Patient Enrollment Ongoing in Phase 3 Trial of AMT-061 for Hemophilia B, uniQure Says in Update

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Caring for Adult Children

News Bioverativ to Present New Data on Hemophilia and Other Blood Disorders at ASH

Columns, HemoWife - a Column by Alliah Czarielle There’s No Need to Fear a Little Blood

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald A Visit to the Dentist Reminds Me of How Far We’ve Come

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Keep Your Hands and Feet to Yourself

News Ixinity Soon To Be Available in Larger Vial and Trial Likely in Younger Children with Hemophilia B, Aptevo Says

Columns, HemoWife - a Column by Alliah Czarielle Managing My Husband’s Hemophilia and Child-rearing Are Both Processes

News #NORDSummit – Major Issues on Table for Rare Disease Patients in US as Midterm Elections Approach

News Bayer’s rFVIII Replacement Therapy Jivi Approved in Canada for Hemophilia A Patients 12 and Older

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Battling the Monsters Together

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo What I Want for My Future Child

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Stories and the Sacred: I Wouldn’t Change a Thing

News AVV-Gene Therapy Successfully Given Again to Dogs in Model of Hemophilia A

Columns, HemoWife - a Column by Alliah Czarielle Talking to Our Future Daughter About Hemophilia

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald A Not-So-Healthy Dose of Nerves

News Students Chosen for “Hemophilia: The Musical” Production Announced by BioMarin and Believe Limited

News Octapharma USA Sponsors Retreat for Women With Bleeding Disorders and Screens ‘Bombardier Blood’

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Invisibility Is Not the Easy Way

Columns, HemoWife - a Column by Alliah Czarielle How I’ve Combined Being a New Bride with Volunteering

News Rate of Total Joint Replacement Similar in Hemophilia A and B, Study Reports

News Bypassing Agents Used for Hemophilia A May Also Benefit Children with Hemophilia B, Case Series Reports

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald ‘Baby Is Sooo Big’

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo I Work in a Hemophilia Organization to Serve My Fellow Hemophiliacs

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald A Routine Ailment … Maybe One Day

News FDA Approves Hemlibra to Treat Hemophilia A Without Factor VIII Inhibitors

News Advocacy Groups, Doctors Question Rising Prices of Rare Disease Treatments

Columns, HemoWife - a Column by Alliah Czarielle When Safety Is a State of Mind and Not a Set of Circumstances