When Loss Leads to Strength
I have been part of the bleeding disorder community for over 20 years. The early days were filled with fear as I learned about ... Read more
Updates
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Dear Person with Disability: Money Matters, but Not Always
Dear (young) person with disability, I hear you. You’re having a tough time with money. Maybe you’re having difficulty finding a job. You probably ... Read more -
Researchers Recommend Changes to Protocol in Novoseven/Feiba Combo Therapy
Combining the bypassing agents Novoseven and Feiba, with extended time between doses, could be a successful and cost-effective protocol to manage bleeding episodes in ... Read more -
Hepatitis C Virus Is Major Predictor of Liver Cancer in Hemophilia, U.S. Inpatient Data Reveals
Past infection with the hepatitis C virus (HCV) is the major risk factor for hepatocellular carcinoma (HCC), the most common type of liver ... Read more -
What Is in a Name?
Many of us have names that represent legacies and traditions handed down from generations past. My mom named me after my grandfather’s brother who died ... Read more
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Holding onto Hope During the Worst Hemophilia Challenges
I’ve been cleaning up my computer files and finding pictures everywhere except where they ... -
BIVV001 Increases Half-life of Factor VIII in People with Severe Hemophilia A, Phase 1/2a Trial Shows
A single dose of BIVV001 significantly increased levels of factor VIII for a week in ... -
Keeping It Real and Staying Inspired
The Philippines was in an extra festive mood over the Christmas season. Alongside the ... -
Novoeight Safe, Effective in Hemophilia A Patients Over Long Term, Phase 3b Trial Shows
Long-term treatment with Novoeight (turoctocog alfa) is safe and effective at preventing bleeding episodes ... -
First Hemophilia B Patient Treated with SB-FIX Gene Therapy in Phase 1/2 Trial
Sangamo Therapeutics has dosed the first patient in a Phase 1/2 clinical trial testing its ... -
Our Greatest Masterpieces
Last year, I traveled to Chicago and saw the masterpiece “A Sunday on La ...
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Europe’s CHMP Recommends Approval of Hemlibra to Treat Hemophilia A
News
Europe’s Committee for Medicinal Products for Human Use (CHMP) has issued a positive opinion supporting the approval of Hemlibra (emicizumab) for routine prophylaxis of bleeding episodes in hemophilia A patients with factor VIII inhibitors. Hemlibra is a humanized monoclonal antibody that ... Read more