A Not-So-Healthy Dose of Nerves
My youngest son continues to celebrate good health. The last time he suffered a joint bleed was in February 2014. A million years seem ... Read more
Updates
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Students Chosen for “Hemophilia: The Musical” Production Announced by BioMarin and Believe Limited
BioMarin Pharmaceutical Inc. and Believe Limited have announced the students chosen to participate in the theatrical production of “Hemophilia: The Musical,” a program that aims to ... Read more -
Invisibility Is Not the Easy Way
I loved watching the Harry Potter movies with my sons, especially the earlier ones where Harry, Ron, and Hermione were much younger. The magic ... Read more -
How I’ve Combined Being a New Bride with Volunteering
My husband Jared mentioned in his latest column that he works at a local organization called the Hemophilia Association of the Philippines for ... Read more
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Rate of Total Joint Replacement Similar in Hemophilia A and B, Study Reports
Total joint replacement (TJR) is more common in severe hemophilia patients requiring more frequent ... -
Bypassing Agents Used for Hemophilia A May Also Benefit Children with Hemophilia B, Case Series Reports
Single or combination therapy with bypassing agents used for hemophilia A patients with inhibitors ... -
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I Work in a Hemophilia Organization to Serve My Fellow Hemophiliacs
It’s rewarding to be able to serve my fellow people with hemophilia. I have ... -
A Routine Ailment … Maybe One Day
There is a funny cartoon making the Facebook rounds. It shows two images, one ... -
FDA Approves Hemlibra to Treat Hemophilia A Without Factor VIII Inhibitors
The U.S. Food and Drug administration (FDA) has approved Genentech’s Hemlibra (emicizumab-kxwh) for routine prophylactic ...
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Europe’s CHMP Recommends Approval of Hemlibra to Treat Hemophilia A
News
Europe’s Committee for Medicinal Products for Human Use (CHMP) has issued a positive opinion supporting the approval of Hemlibra (emicizumab) for routine prophylaxis of bleeding episodes in hemophilia A patients with factor VIII inhibitors. Hemlibra is a humanized monoclonal antibody that ... Read more